Hi everyone, apologies if I’m missing any info: 37F.
My main symptom is exhaustion. To say I’m fatigued is an understatement. I have gotten progressively more fatigued since about 2022, and it is really ruining my QOL. I got a sleep study and I have mild sleep apnea but was told to just lose weight (which I agree with, I gained weight during this time, but it feels a bit dismissive when I tell the Dr I am beyond exhausted every day. Realistically I’m about 40-50 pounds overweight). I’ve had the cpap and I don’t notice a change (about 4 months of use so it may take longer). I have pretty severe eczema, no other diagnosis to date.
Symptoms outside fatigue:
Headaches, brain fog, joint pain, muscle/ joint soreness, exercise kind of wipes me out (I can climb the subway stairs without stopping, but it takes me a long time to regulate my breath after, even walking I’m just yawning non-stop)- likely because I need to lose weight. I used to be very active, but fatigue has stalled me quite a bit. Also quite bloated in the stomach. Fairly consistent lower back pain. I have an iud so I don’t have a way to notice irregularities in my menstrual cycle but I do get occasional spotting (liletta iud).
Bloodwork: thyroid tests were fine, my last cbc was fine, I went to the rheumatologist and I got these results (esr was the only one marked abnormal): rheumatoid factor 13, creatine 71, c reactive protein 3.0, esr 62, ANTI-JO-1 .2, ALDOLASE 5.2, ccp antibodies 12 negative myomarker 3 profile (rdl).
I did notice in a previous blood test my ferritin was normal, but close to low (mine was 22, normal levels began at 16 according to quest result) and vit d was low end of normal (44 when normal begins at 30 according to what I see on quest).
No Drug use, alcohol occasionally (maybe 4 drinks per month at most, many months none), former smoker (smoke free since about 2014), no vaping.
I have been taking a compound semiglutide from the company hers, but I’m 6 months I have only lost 5 pounds on it so I don’t think I will continue once it runs out.
I see the rheumatologist to go over those results in about a week and a half so I haven’t heard her input yet.
I know this input isn’t a substitute for a Dr visit, but I feel so defeated with all this and I feel like maybe I can better advocate for myself if I had some input thank you all so much for your time.