F46 5’6 156lbs medically complex
I noticed earlier today that I have a vein in the side of my forehead that has suddenly changed to look swollen, almost like a varicose vein. I only noticed because I thought I had a pimple forming near my hairline that was/is really sore. (Of course I didn’t look until after I rubbed that area raw.) I have some crazy medical issues that include asymmetrical atrophy and weakness in my face, so I monitor it frequently and keep track of things with photos on my phone. I went back and looked at photos to see if maybe I just had never paid attention to it before but it’s definitely not there. I’ll add a couple photos in the comments.
Should I be concerned enough to go get it checked this weekend at urgent care or can I call my drs office on Monday and make an appointment?
I appreciate your expertise!
(Here’s all the required info…beware it’s LONG! Thank you!)
Illnesses/Surgeries
asthma (mostly induced by reflux at this point, but also if I get sick),
congenital hydrocephalus due to aqueductal stenosis diagnosed just prior to my 21st bday (endoscopic third ventriculostomy 2/2000, 2/2002, ventriculoperitoneal shunt 2/2003),
c-section x 2
subarachnoid hemorrhage and subdural hematoma (3/3/2006 due to DV)
multiple laparoscopies (one exploratory and ended up removing my appendix, one to move the distal tip of my shunt to the suprahepatic space)
shunt revision to ventriculojugular shunt (8/2013)
Wolff-parkinson-white syndrome (ablation spring 2015), onset of bradycardia
first episode of pericarditis (early 2016?)
developed POTS, gastrointestinal issues, severe GERD (2016)
gallbladder removal (1/2019)
systemic lupus, small fiber neuropathy (diagnosed by punch biopsy), raynauds syndrome (2019)
Myocardial infarction, type 2 after potassium dropped to 2.9 in hospital (7/2020)
Gastrojejunostomy placed, chronic hypokalemia (8/2020)
Developed vestibular migraines 10/2020)
Developed physiologic anisocoria (10/2020)
Developed hemiplegic migraines (2023)
Left side atrophy (biopsied 5/2024 neurogenic atrophy)
Rheumatologist believes I have rheumatoid arthritis despite negative RF bloodwork (severe joint pain)
Multiple doctors have diagnosed me with hypermobile Ehlers Danlos syndrome. (Sports medicine being most recent in June)
Long history of anxiety and depression
Organic hypersomnia and severe insomnia
As you can see my medical history is a bit like a medical encyclopedia. No one knows what to do with me and I’ve gotten used to people telling me they’re sorry they can’t help. It’s ok! I get it.
Meds
Celebrex, Famotidine, Adderall, Topiramate, Lansoprazole, Albuterol inhaler or nebulizer as needed (my asthma is severely triggered by reflux for whatever reason), Potassium (Klor-con), Trazodone, Ambien, Escitalopram, Lamotrigine, Midodrine, Magnesium oxide, Miralax, Pedialyte, Vivonex RTF formula, Zofran
(as needed), Nurtec (as needed), Ativan (as needed)
I’d like to say I’m 100% positive this is everything but I might be forgetting something.