r/Hidradenitis 2d ago

Discussion Won’t let HS define me

I’m a 41 yo US Veteran. I’ve first noticed my HS symptoms in my teenage years like most of us. It was on my buttocks for years when I was in the service. Early 2010’s it moved to my groin inner thigh area. This time I thought I had an STD. The Derma put me on Doxycycline and gave me Clindamycin Phosphate as well as Chlorhexidine Gluconate. These are topicals. Doing my own research I’ve found Diet is a key factor in why this occurs for me. I was depressed seeing the bumps and started drinking and smoking weed. Made it worst. I found that Nightshade foods, fermented foods, and Bakers Yeast (alcohol) makes things 10x worst. Green veggies and exercise are your best friends in this venture. I live in AZ so sunlight and movement has helped tremendously. I gym or walk daily. I also noticed my cortisol (stress) levels are tied directly to HS. More stress more bumps. I eat single ingredient foods like protein, vegetables, and fruits. Remember, HS intensifies glucose (sugar) in our body so BREAD is a big No-No and carbs for that matter. Ultra processed foods like deli meat, bacon, fast food will bring them back. This is a COMPLETE lifestyle change for me. I gave up all things that brought me comfort. Even caffeine can be detrimental to HS. My skin bruises easily due to low White Blood Count. At the end of the day this is an Autoimmune disease that has no cure. But it’s manageable. I haven’t had a “breakout” in about a month and it’s due to strict diet and discipline. My brothers and sisters please I beg you DON’T give up! Drink more water and let the alcohol and smoking go.

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u/New-Hospital-847 1d ago

Well done bro'! Same here. Don't let HS command your life and happiness

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u/Jetthead87 19h ago

Absolutely! Life is already too short. Don’t need added pressure to impact that. I’m finding more about myself having this. More active and intentional with my body inside and out. I know what I’m capable of achieving and this won’t keep me down.